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The Friday before Mother’s Day 14 years ago, I felt like I was coming down with something. A week later, as I wrote in my book: I don’t feel tired; I feel stunned on the ground from body slamming a brick wall. I feel fifty years older. I feel unplugged in the dark. That’s how I felt while combing my hair in the YMCA locker room after one of my hour-long swims. What I actually thought was Maybe this is more than a cold. I’m whipped, and my legs are sore, even though I didn’t swim as hard today. Usually, swimming made me feel calm and strong, without causing sweating, even after the two-hour practices I’d done on my high school swim team….But I’d had this cold, which was mild except for utter exhaustion that made me not want to do anything involving physical or cognitive effort…. I didn’t learn my diagnosis until two years and five months had passed and my condition had worsened. Two years represented a tenth of my life. Falling ill at age nineteen was like having my wings chopped off just as I was taking flight. Maybe the timing would’ve been worse if they had been chopped when I was hundreds of feet in the air, a year into a career in a city far from my parents. But I would’ve liked to soar through the air. If that sounds like the start of a story about long COVID, you’re partially right. Long COVID and ME/CFS have much in common, chiefly, an overwhelming and flawed bodily response to a virus. ME/CFS is just as real and just as detrimental. Even after 14 years, some people don’t know what ME/CFS is and don’t know that I’ve written a book that is meant to help young people living with any invisible chronic illness. Don’t spend another 14 years in the dark. Read my book for a personal lesson, or see the Resources section for online information.  The cover of my memoir, Lightening the Shadow Darla Nagel is a biomedical copy editor who has an invisible chronic illness. She wants to help other patients and enlighten health care professionals about our experiences. If you’d like to receive quarterly updates from her, sign up by emailing darla.nagel {a} gmail.com.
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