Rehmeyer’s experiences embody the saying “Desperate times call for desperate measures.” Patients will relate to her experimentation as she learned to pace herself, to the unhelpful physicians she saw before consulting ME/CFS expert Dr. Nancy Klimas, and to her struggles to work and have relationships while ill. Rehmeyer fulfills the role of advocate well through explaining issues surrounding ME/CFS, such as its name and the damaging PACE trial. Any chronically ill patient has to sift through an array of information online to find valid research and viable treatments, and this process is even more challenging for ME/CFS patients, who often have cognitive difficulties coupled with lack of well-educated or empathic physicians to ask questions of. The amount of detail and scientific facts in the memoir are enough to impress but not overwhelm. The musings related to Christian Science and mathematics, worded for academics rather than patients with brain fog, could be the one drawback of this book.
5 out of 5 stars
Darla Nagel is an editor and writing tutor who has an invisible chronic illness. She wants to help other patients and enlighten health care professionals about our experiences. If you’d like to be alerted whenever she writes a new post, sign up by e-mailing firstname.lastname@example.org.
Darla copyedits biomedical research while living with an invisible chronic illness.