Solve ME/CFS is a nonprofit that supports scientific research and physician and caregiver education on ME. Patients benefit from its research grants and free educational newsletter and webinars. I like keeping up with research developments and learning names of scientists who are interested in exploring ME. Without a new generation of researchers and clinicians focused on ME, we will lose the little progress we’ve made in the past decade. SolveMECFS.org has a large website, so I’ll narrow it down to the most useful parts: patient resources, whose audience ranges from those who don’t know what ME is to those who’ve lived with it for years, and scientific initiatives, including links to a patient biobank registry and patient narratives for medical professionals. This resource has been added to my list of resources for patients with ME or fibromyalgia. With Solve ME/CFS, you can get involved in advocacy campaigns or simply learn more about your diagnosis. If there are other resources you’d like me to share, let me know in the comments! Darla Nagel is a biomedical copy editor who has an invisible chronic illness. She wants to educate healthcare professionals and encourage patients. If you want to receive quarterly updates from her, email darla.nagel{a}gmail.com.
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