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I'm feeling better than I have in years and taking on more work than ever. However, the metaphor of my ME/CFS as a heavy shadow remains apt because now instead of being one me, it's lingering behind me, following me. It won't go away. It's always there. I keep looking back at it to see how big it is. What will it do next?  Photo: Damien Walmsley, Flickr Creative Commons Darla Nagel is an editor and writing tutor who has an invisible chronic illness. She wants to help other patients and enlighten health care professionals about our experiences. If you’d like to receive quarterly updates from her, sign up by emailing darla.nagel@gmail.com.
4 Comments
Linda Miller
8/28/2018 09:40:18 am
It must feel like you are being stalked by a menacing ogre. People often say, "Live one day at a time." It's good advice, but hard to follow. 8/28/2018 05:31:46 pm
You said it, Linda! Know what else is like a menacing ogre? A doctor who says, "ME/CFS is nothing serious."
Kelly
8/29/2018 03:32:40 pm
While ME/CFS isn't 'all in one's head', this is a perfect example of the mind-body connection, and how the illness can indeed be prolonged or perpetuated with fears and negative assumptions. 8/29/2018 06:00:08 pm
I appreciate your drive to help, Kelly. I've explored my past through counseling and identified no trigger for my illness. I do keep a positive outlook usually, just not quite on the day I wrote this post. Being positive and in tune with one's past and feelings does help with emotional and mental health, yes. I try to keep an open mind and tell myself the future could bring better health, not necessarily worse health. Leave a Reply. |
Darla Nagel
Darla copyedits biomedical research while living with an invisible chronic illness. Categories
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