I’m facing the retirement of two helpful physicians and knowing their replacements will be different in their approach to my illness. I am concerned about my care, especially if I have a relapse. I am grateful for all the ways these two physicians, known in my book as Dr. Three and Dr. Special, have helped me. I wish them a blessed retirement yet wish they could remain in the field for patients like me. A patient has to be assertive with, provide a timeline of illness events and tests to, and review records from physicians. I did all three with these two doctors after negative experiences with previous physicians. The patient/provider relationship is vital. There is a crucial need for physicians with knowledge of ME/CFS care, especially in light of the increase in cases of long COVID, or post-acute sequelae of COVID. If you’re a budding health care professional who wants to know more about ME/CFS, email me! If you want additional lessons learned from chronic illness, email me so that I send them your way! Darla Nagel is a biomedical copy editor who has an invisible chronic illness. She wants to educate healthcare professionals and encourage patients. If you want to receive quarterly updates from her, email darla.nagel{a}gmail.com.
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